Back to clinic yesterday. I'm no longer anaemic, the EPO injections have sorted out my haemoglobin.
The platelet count is another story - they have dropped a little further so the EPO injections are suspended for the moment in case they are causing the problem. Also I'm now on half dose junior aspirin - aspirin is an anti platelet drug - and I've been told to delay next week's third round of infant injections - they too have sometimes been associated with reduced platelets - all in all a mystery so it's back to clinic next week.
Meanwhile my insides are revolting again - GvHD of the colon. The immunosuppressant treatment that was controlling this hasn't been changed in the last three weeks so another mystery - why are my new T lymphocytes attacking me? As result of this my weight has dropped a little but seems stable again.
Despite all this I feel as well as I've felt for quite some time - thanks to the increased haemoglobin I presume unless the real reason is another mystery!
This last Tuesday Karine and our neighbour Janet ran a Macmillan coffee morning and also an afternoon session as part of Macmillan's 'World's Largest Coffee Morning. They have raised about £480 so far. The surplus cakes went to the school where Janet works and to the dept of Haematology!
Beatles - "Magical Mystery Tour" 1967 - track 1
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