D+14 months - "It's Alright Ma (I'm Only Bleeding)" *

As a child I was taught it was rude to count but it seems doctors are excused this restriction.  Full Blood Counts keep coming back with some funny numbers, platelets down to 26 (a few weeks ago they were over 50 and they should be over 150) and haemoglobin has fallen back a bit since stopping the EPO injections.  The result of the low platelets is multiple little bruises especially on the arms, rather unsightly but painless.

Fortunately the GvHD has been behaving itself in the last two weeks despite reducing the Ciclosporin from 30mg twice daily down to 20mg and now 10mg twice daily as of yesterday.  The plan is to stop it later this month all being well - this is exactly a year later than originally planned!  This time last year it was planned to stop Ciclosporin by the end of October, then GvHD reared its head and everything changed, especially my weight!

It's back to clinic next week to recheck the platelets.  So much for breaking free of the hospital and being seen less frequently, I keep being pulled back, just like the leader of a certain right wing party!  I'm not complaining though, it's the right decision and there haven't been any 'altercations' over this!

The walk in Derbyshire has now raised £1,600.26 with possibly a little bit more still to come.  As soon as the money comes through from JustGiving we will present the Nottingham Leukaemia Appeal with a cheque.

* Bob Dylan - "Bringing It All Back Home" 1965 - track 10