D+13 months - "The View from the Afternoon" *

Karine took me to clinic this morning to see Prof Russell.  The fatigue is gradually lifting and my Achilles tendon continues to very very slowly improve.  At the last visit the EPO injection which stimulates the bone marrow to produce more red cells was doubled and my Hb is now gradually improving at last.  If the improvement carries on I'll cancel the cardiology referral as and when it comes through.

Meantime the plan is to reduce the Ciclosporin because reducing the steroids causes the GvHD to flare up.  The Ciclosporin is now down to 30mg twice daily.  At the present rate I could be off it altogether in a couple months time.  However there was a similar timetable for stopping it exactly a year ago and then GvHD kicked in so anything could happen and something probably will happen - it's back to trying to be a patient patient again!

We also visited the practice nurse this morning and I had a second lot of baby immunisations - four needles!  I had already given myself two EPO injections before setting off and when we got to hospital there were blood tests, another needle - all good fun!

During the past few weeks we have had a few days in London with Charlotte, Stewart and Eden and then a week in a bungalow in north Norfolk with Eden.  We were fortunate with the weather and spent the time going to the beach, a boat trip to see the seals at Blakeney point, a steam train ride, a visit to a circus and a farm, a busy week full of fun.  It is so good to get away for a short while.

The JustGiving page has expired all on its own so we've had to create a new one (with a similar name).  This means the link on previous blogs doesn't work.  So far we had raised £170 on the old page.  The new page has only just been opened so shows £0 at the moment but all the money from both pages will go to "Notts Leukaemia Research"  Here is the new link....

Blood, Sweat and Cures

* Arctic Monkeys - from their album "Whatever People Say I Am, That's What I'm Not" - track one