Monday 15 February 2016

D+207 - "Big Money* " or perhaps "Fields of Gold** "

The Concert at St Mark's Hall yesterday afternoon was a great success.  A huge thank you to everyone who helped with selling tickets, setting up the hall, baking cup cakes and serving during the interval.  There was an audience of 60 people.  The chief organisers were Lucy & Karine.  The programme was put together mainly by Lucy, Mike and Tim with some input from other members of their family.  Mike did the recitation for the second item and Tim, Lucy, Neil & Deborah played beautifully.  It was great to see so many friends and family all in one place.  We raised over £800 for the Nottingham Maggie's centre at the City Hospital.

Last week in clinic Prof continued to reduced my immunosuppression and so far so good - fingers crossed.  I'm down to about 150 tablets a week which is a big improvement on the 240 odd I was on a few weeks ago.

My exercise tolerance is gradually improving.  At the weekend I did a complete circuit of our local park, the first time I've managed this since the autumn.  This morning was a beautiful sunny winter's day and Karine and I walked around Mill Lakes in Bestwood village.  There were plenty of birds as always and Karine spotted a crane.

Fatigue is still an intermittent problem.  This seems to be almost obligatory at this stage judging by other people's experiences so it is just something to be borne, no point in grumbling about it.  An early definition of 'a patient' is "one who endures hardship without complaint" which seems very appropriate at the moment, an ideal to be aimed for.

The Mindfulness course Karine and I have started attending at the Maggie Centre aims to help us to live more in the moment and appreciate the positives rather than worry about the future and the past.

* Philip Lavil - "Calypso" track 2
** Sting - "Ten Summoner's Tales" track 3

No comments: